Board of Directors

We are advocates & volunteers who have had our lives impacted by post-viral illness and disability.

Portrait of Megan Carmilani

Megan Carmilani

Founder & President
Megan Carmilani (she/her) is a disability advocate with decades of experience fighting for awareness and healthcare for the disabled. Diagnosed with a post-viral syndrome as a child, her lived experience as a disabled teen, adult, and parent is what drives her work. She created Long Covid Families to give children and caregivers support and guidance, with a focus on self-determination, empowerment, and equity. She incorporates the acquired skillset of living with ME, POTs, MCAS, Fibromyalgia, and other chronic conditions into her work, her parenting and her advocacy, Megan has her MEd in Curriculum and Instruction, is a former reading specialist,  mom & partner.

Portrait of Liza Fisher

Liza Fisher

Board Member & Advocate

Liza Nicole Fisher (she/her) is a biracial woman currently residing in Houston, TX with Long Covid. She graduated with a B.A. from Ohio Northern University and went on to receive her MBA from Northern Kentucky University. She worked as a fight attendant for both a regional and international contractor. Then a part time yoga instructor after completion of yoga certification in Rishikesh, India. Since being disabled from covid she has participated in several research projects. Liza is a dedicated citizen scientist, health advocate and wellness advocator with special interest for BIPOC and other marginalized communities.

Portrait of Gretchen Kelly

Gretchen Kelly

Board Member & Advocate

Gretchen (she/her) is a freelance writer, mother and advocate. She was diagnosed with ME/CFS in 2004 and is the parent of a child with chronic Lyme Disease. Her experience with two contested post-infectious illnesses informs the advocacy work she does today. Equity in healthcare and research, and centering patient’s voices are what drives her advocacy.

Portrait of Erica Hayes

Erica Hayes

Board Member & Advocate

Erica (she/her) is a mother and Long Hauler in Pennsylvania. She is passionate about sharing information and finding solutions. 

Erica’s background is in technology as an Experience Designer & Researcher. She uses qualitative & qualitative research methods to form an understanding of complex problem spaces, with solution generation and lean experimentation to create products that meet the users needs.

Connect with Us

Join our support group!
You can find us on Facebook at Long Covid Families or message us about an upcoming event. If you are an organization that would like to learn more about Long Covid or post-viral syndromes and how to support children and families, please email us at info@longcovidfamilies.org