Staying up to date on research is critical to our work. We connect the Long Covid community with research opportunities, advocate for more pediatric research, and disseminate relevant and timely research news to the community
Did you know the majority of research time – especially in pediatrics – is spent recruiting participants? Researchers need to focus on what they do best – collecting data and finding solutions. So we’re focusing on what we do best – being a conduit between research and community.
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The Long Covid Families Research Database via Airtable
New research on Long Covid and Post-Covid conditions are published at a rapid pace. Long Covid Families collects the latest research & resources for our community and update frequently.
General studies, including prevalence.
Research on Long Covid in kids and adolescence.
PEM is worsening of symptoms after any activity that typically has a delay in onset of around 24 hours. Pacing is an effective way of manage symptoms.
Research and information on MCAS.
Research on Dysautonomia like POTS, Orthostatic Hypotension, and general Orthostatic Intolerance.
Research and information on ME/CFS.
Research on Post-COVID cognitive dysfunction: thinking difficulties, brain fog, and concentration issues.
Research on the development of diabetes Post-COVID infection,
Information on Hypermobility Spectrum Disorder (HSD) & Hypermobile Ehlors Danlos Syndrome (hEDS.) Antidotally, these diagnosis’s are common in the Long Covid community.
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