Long Covid Research

Staying up to date on research is critical to our work. We connect the Long Covid community with research opportunities, advocate for more pediatric research, and disseminate relevant and timely research news to the community

Research Opportunities

Did you know the majority of research time – especially in pediatrics – is spent recruiting participants? Researchers need to focus on what they do best – collecting data and finding solutions. So we’re focusing on what we do best – being a conduit between research and community. 

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The Long Covid Families Research Database via Airtable

New research on Long Covid and Post-Covid conditions are published at a rapid pace. Long Covid Families collects the latest research & resources for our community and update frequently.

General Long Covid Research

General studies, including prevalence.

Pediatric Long Covid

Research on Long Covid in kids and adolescence.

Post Exertional Malaise (PEM) & Pacing

PEM is worsening of symptoms after any activity that typically has a delay in onset of around 24 hours. Pacing is an effective way of manage symptoms.

Pediatric Spread of Covid

Masks, ventilation, social distancing, etc.

Organ Damage after COVID

Collection of organ specific findings.

Mast Cell Activation Syndrome (MCAS)

Research and information on MCAS.

Dysautonomia & Orthostatic Intolerance

Research on Dysautonomia like POTS, Orthostatic Hypotension, and general Orthostatic Intolerance.

Myalgic Encephalomyelitis
Chronic Fatigue Syndrome

Research and information on ME/CFS.

Lyme Disease

Research and information “post treatment” Lyme disease.

Body Pain / Fibromyalgia

Research and information on body and muscle pain and fibromyalgia.

Stomach / Gut

Research on digestive issues Post-COVID.

Cognitive Function & “Brain Fog”

Research on Post-COVID cognitive dysfunction: thinking difficulties, brain fog, and concentration issues.

Post Covid Diabetes

Research on the development of diabetes Post-COVID infection,


Information on Hypermobility Spectrum Disorder (HSD) & Hypermobile Ehlors Danlos Syndrome (hEDS.) Antidotally, these diagnosis’s are common in the Long Covid community.

Mental Health

Research on mental health and Long Covid.


Studies looking into the Pathology of Long Covid / PASC.

Long Covid & Mortality

Mortality among those with Long Covid and associated syndromes.


The latest on COVID reinfection: prevalence, mortality, hospitalization, and Long Covid / PASC.

Pediatric Spread

School safety and mitigation strategies for slowing the spread of COVID.

Long Covid & Mortality

Mortality among those with Long Covid and associated syndromes.

Long Covid Families is happy to support the community in any way we can. Join our Facebook Support Group, follow us on social media, or contact us, anytime.


Donations are tax deducible and every little bit helps us pay for the essential tools we use for advocacy & awareness. Donate to Long Covid Families.