Our Mission

Empowering families living with Long COVID to thrive.

We foster reconnection and resiliency.

Our community leverages our lived experience and collective knowledge to advocate for the pediatric population.

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Who We Are

We are a community of families affected by post-infectious diseases.

Long Covid Families was founded in 2021 by Megan Carmilani, who developed post-viral syndromes (POTS, MCAS, and ME/CFS) after two separate Mononucleosis diagnoses as a child. When the pandemic hit, Megan was approached by friends who were experiencing symptoms that Megan had for years. She decided to create Long Covid Families – the community that she needed as a child.

How We Can Help

• Peer support and a community built around shared experience.
• Guidance on accommodations available at schools and in the workplace.
• Resources for caregivers, individuals, and doctors.
• Somatic practices and art workshops to address the trauma of illness and remain connected with our bodies and to our spirit.
• Caregiver/child workshops to foster a connection within families.

Long Covid

Get the basics on Long Covid / Post-Acute Sequelae of SARS CoV-2 infection (PASC) – the latest research, and stories from those impacted.

What is Long Covid?
Long Covid in Kids
Long Hauler Stories
Long Covid Research


Healthcare

It’s important to work with your doctor to rule out other potentially serious complications, and find a doctor who has experience treating Post-Covid conditions.

Working with Doctors
Symptom Journal
For Providers
For Physical Therapists
Adults: Find a Doctor
Children: Find a Doctor

Daily Living

We are dedicated to helping you find ways to not only manage symptoms of post-covid conditions, but find ways to enjoy life.

Energy Management
Allergy & Inflammation
Orthostatic Intolerance
Mobility Aid

Work & Disability
School Accommodations

The Latest Research

New research on Long Covid and Post-Covid conditions are published at a rapid pace.

Long Covid Families collects the latest research & resources for our community and is constantly updating our collection.
If you have information that may be helpful for our community, please contact us.

Advocacy & Public Health

We are passionate about sharing our experience & knowledge to affect change.