Second Annual Back to School Conference, August 2023
The 2nd Annual Long Covid Families Back to School Conference was held August 15-17th. Patients, caregivers, educators and healthcare providers from around the world attended three days of groundbreaking and informative presentations. View recordings of each session below:
Day One: Unraveling the Complexity: Challenges in Diagnosing Infection-Associated Conditions. The impact of Long Covid on children and schools followed by caregiver panel.
Day Two: Q&A with Dr. Yonts, Director, Children’s National Post COVID Program Clinic
Day Two: Long Covid Kids, A Toddler’s Journey Featuring Long Hauler Mallory Stanislawczk, a Nurse Practitioner and mother of a child with Long Covid.
Day Two: Ventilation and Schools with Fran Gillmore, Industrial Hygienist
Day Three: Navigating Equitable Education for Kids with Long Covid Caregiver panel
Day Three: Caregiver Q&A – Schools
Day Three: Postural Orthostatic Tachycardia Presentation by Dr. Sunjana Reddy and Mallory Stanislawczyk, CPNP of Awareness for POTSies
First Annual Back to School Conference, August 2022
The Long Covid Families Back to School Virtual Conference was held August 22-26th. Patients, caregivers, educators and healthcare providers from around the world attended four days of groundbreaking and informative presentations. View recordings of each session below:
Day One: What is Long Covid?
00:00 Introduction
04:25 What is Long COVID? What the Research Tells Us with Liza Fisher
17:54 Post Infectious Illnesses with Jaime Seltzer
48:04 Long COVID Research with Dr. Harlan Krumholz 1:O2:16 Impact of Long COVID on Learning with Dr. Melissa Ramirez
1:29:50 Excerpt from the Global Interdependence Alliance with Megan Carmilani: Personal Account of Childhood Mis-diagnoses
1:40:35 Tracking Long COVID Symptoms with Gretchen Kelly
Day Two: Navigating Illness.
00:40 COVID Infection Plan
16:49 How to do a rapid antigen test on a child
26:41 Tips for daily living for kids with Long COVID
40:15 Supporting kids’ mental health with Sarah Darsey Myers, LISW- CP
01:18:35 Workplace accommodations for teachers and staff with Long COVID with Andrew Wylam
01:35:38 School accommodations for students with Long COVID
Day Three: All About Prevention.
00:58 COVID reinfections with Dr. Megan Fitzgerald of Patient Led Research Collaborative
23:00 Ventilation in schools for COVID safety with Industrial Hygienist Fran Gilmore 01:03:15 How to fit a pediatric mask with Danielle Peterson of Project N95
01:17:22 How to build a Corsi-Rosenthal box
01:21:41 Mask Together Americ
Day Four: Where Do We Go From Here?
00:53 What is the role of Public Health? with Dr. Jeoffrey Gordon
15:31 Adultism with Dr. Sarah Steinbacher
42:50 COVID equity in schools with Kristin Urquiza of Marked by COVID
01:01:32 the NIH RECOVER Pediatric Long COVID study with Dr. Rachel Gross
Additional Resources:
NIH Pediatric RECOVER Study: https://studies.recovercovid.org/
Pediatric and Adult Pacing Guides: https://www.meaction.net/resource/pacing-and-management-guide/
Long Covid and ME: https://www.meaction.net/long-covid-me-understanding-the-connection/
Yale LISTEN Study: https://medicine.yale.edu/ycci/listen-study/
Project N95: https://www.projectn95.org/
Marked by COVID: https://www.markedbycovid.com/
Ugency of Equity Toolkit for Schools: https://docs.google.com/presentation/d/e/2PACX-1vR_YvwG3GO7LoKYFaWDVpyiEwCgQPOkwrBHGxpOjlSyW4vp4qk-aeN_W7R9T5sPhnN99NwnMlKZm4Sd/pub?start=false&loop=true&delayms=60000&slide=id.g1501dd08c86_0_603
Ventilation in Schools: https://peoplescdc.org/2022/09/23/ventilation-for-coronavirus-in-schools/
Covid Legal Assistance, Disability Benefits: https://peoplescdc.org/2022/09/23/ventilation-for-coronavirus-in-schools/
Depression in Adolescents: https://kuclinic.ku.edu/sites/kuclinic.ku.edu/files/files/Depression_2%5B1%5D%20copy.pdf
Childhood Depression: What Parents Need to Know: https://kidshealth.org/en/parents/understanding-depression.html
Stages of Social/Emotional Development: https://childdevelopmentinfo.com/child-development/erickson/
What is Long Covid?
Long Covid is defined as ongoing, newly acquired health problems experienced after having COVID-19. Some people recover, while others experience chronic illness.
Long Hauler Stories
Read first hand experiences from those impacted by Long Covid and Post Covid Conditions.
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Long Covid Families is dedicated to helping caregivers, children, and individuals find practical ways to improve their quality of life despite the impact of chronic illness.
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