“Long Covid” describes post-infectious illness that can develop after having COVID-19.
The Latest Research
New research on Long Covid and Post-Covid conditions are published at a rapid pace. Long Covid Families collects the latest research & resources for our community and is constantly updating our collection.
If you have information that may be helpful for our community, please contact us.
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Advocacy & Public Health
We are passionate about sharing our experience & knowledge to affect change.
We help the Long Covid community discover practical ways to enjoy life while impacted by chronic illness. ♥
Illness is a disrupter to the entire family and can cause a feeling of isolation and disconnection. We help caregivers, children, and individuals who have been impacted by long-term complications from COVID-19 infection – reconnect to their own bodies, their families, and to the community.
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“Connection is the energy that is created between people when they feel seen, heard, and valued–when they can give and receive without judgment.”
– Dr. Brene Brown
Who We Are
We are a community of families affected by post-infectious diseases.
Long Covid Families was founded in 2021 by Megan Carmilani, who developed post-viral syndromes (POTS, MCAS, and ME/CFS) after two separate Mononucleosis diagnoses as a child. When the pandemic hit, Megan was approached by friends who were experiencing symptoms that Megan had for years. She decided to create Long Covid Families – the community that she needed as a child.
How We Can Help
• Peer support and a community built around shared experience.
• Guidance on accommodations available at schools and in the workplace.
• Resources for caregivers, individuals, and doctors.
• Somatic practices and art workshops to address the trauma of illness and remain connected with our bodies and to our spirit.
• Caregiver/child workshops to foster a connection within families.
SUPPORT THE CAUSE
Donations are tax deducible and every little bit helps us pay for the essential tools we use for advocacy & awareness. Donate to Long Covid Families.