“Long Covid” describes post-infectious illness that can develop after having COVID-19.

Long Covid

Get the basics on Long Covid / Post-Acute Sequelae of SARS CoV-2 infection (PASC) – the latest research, and stories from those impacted.

What is Long Covid?
Long Covid in Kids
Long Hauler Stories
Long Covid Research


It’s important to work with your doctor to rule out other potentially serious complications, and find a doctor who has experience treating Post-Covid conditions.

Working with Doctors
Symptom Journal
For Providers
For Physical Therapists
Adults: Find a Doctor
Children: Find a Doctor

Daily Living

We are dedicated to helping you find ways to not only manage symptoms of post-covid conditions, but find ways to enjoy life.

Energy Management
Allergy & Inflammation
Orthostatic Intolerance
Mobility Aid

Work & Disability
School Accommodations

The Latest Research

New research on Long Covid and Post-Covid conditions are published at a rapid pace. Long Covid Families collects the latest research & resources for our community and is constantly updating our collection.

If you have information that may be helpful for our community, please contact us.


Subscribe to Long Covid Families monthly newsletter.

Advocacy & Public Health

Liza Fisher featured in The Washington Post

We are passionate about sharing our experience & knowledge to affect change.

News & Media
Press Kit
Current Covid Risk (external)
School Covid Safety (external)

Image of Long Covid Families Board Member, Liza Fisher featured in The Washington Post.
Image Copyright The Washington Post

Our Mission

Long Covid Families is a non-profit organization dedicated to empowering families impacted by Long Covid to thrive. We advocate for the pediatric population, drawing upon our lived experience and patient expertise. We champion pediatric research, and advocate for children’s access to education and medical services.

Join our private Facebook group

Support Long Covid Families Work

Long Covid Families is a patient led, nonprofit organization. Donations are tax deducible and every little bit helps us pay for the essential tools we use for advocacy & awareness.

Our website, email, and creation / collaboration tools are just a few of the our monthly expenses.

Long Covid Families Blog

Nat’s Story
Nat is a bright, high achieving artist. Loves to draw and an honor student in spite …
Bella’s Story
Bella is 20 yo, an artist and hopes to major in Anthropology. She has had to …
Vanessa’s Story
Vanessa got COVID two years ago and struggled with pulmonary, cardiac, and neurological issues in the …
Sammy’s Story
The phone rings. It is 10am and the middle school is calling for us to come …
Navigating the Holidays with Long Covid
Image of white ceramic house grouped with pinecones and a candle Guest post by Jen Roberts …
POV: The Benevolent Violence of an Unmasked Hospital
The lack of masks in hospitals means seeking vital care comes with unnecessary risks. This is …

“Connection is the energy that is created between people when they feel seen, heard, and valued–when they can give and receive without judgment.”
– Dr. Brene Brown

Who We Are

We are a community of families affected by post-infectious diseases.

Long Covid Families was founded in 2021 by Megan Carmilani, who developed post-viral syndromes (POTS, MCAS, and ME/CFS) after two separate Mononucleosis diagnoses as a child. When the pandemic hit, Megan was approached by friends who were experiencing symptoms that Megan had for years. She decided to create Long Covid Families – the community that she needed as a child.


How We Can Help

• Peer support and a community built around shared experience.
• Guidance on accommodations available at schools and in the workplace.
• Resources for caregivers, individuals, and doctors.
• Somatic practices and art workshops to address the trauma of illness and remain connected with our bodies and to our spirit.
• Caregiver/child workshops to foster a connection within families.

Instagram Feed

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Long Covid Families is happy to support the community in any way we can. Join our Facebook Support Group, follow us on social media, or contact us, anytime.


Donations are tax deducible and every little bit helps us pay for the essential tools we use for advocacy & awareness. Donate to Long Covid Families.