PROGRAM

Policy and Advocacy

About Policy and Advocacy

Whether a child with Long COVID receives school support or medical care is often decided long before the child walks into a classroom or clinic. It is shaped by public policy and the decisions made by government.

Our Advocacy program brings pediatric evidence and families’ experiences to the people making those decisions.

A smiling mother sits on a couch, embraced by her two children who kiss her cheeks at the same time.

How Policy and Advocacy Works

Direct Advocacy

We take pediatric Long COVID evidence directly to policymakers. We meet with congressional offices and travel to Washington, D.C., to represent the needs of children with Long COVID.

Policy Work

We develop recommendations and resources that inform decisions affecting children with Long COVID.

Our work includes letters to Congress, policy briefs, white papers, and formal comments on proposed federal actions.

Public Action

When a decision affecting children with Long COVID is open to public participation, we make it easier for people to understand the issue and respond.

Ways to Take Part

There are many ways to speak up for children with Long COVID.

Take part in Advocacy Week, when we help families talk with their lawmakers, respond to action alerts, or join Pediatric Long COVID Awareness Week.