Book pages


Navigating the Holidays with Long Covid
Image of white ceramic house grouped with pinecones and a candle Guest post by Jen Roberts Holidays are often portrayed as this ideal, cheerful and cozy time spent with family. But real life doesn’t always end up that …
POV: The Benevolent Violence of an Unmasked Hospital
The lack of masks in hospitals means seeking vital care comes with unnecessary risks. This is what the collective abandonment of disabled people looks like.
Happy Birthday ADA!
Today is the 32nd birthday of the American's with Disabilities Act, and we are starting to quantify the effects of COVID-19, and post-viral illness on the American working class.
Celebrities Speak Out on Long Covid
Post-Covid conditions do not discriminate. This week we would like to share with you some of the famous Long Haulers who are speaking out about their health stuggles since catching Covid. NBC New York Actress Alyssa Milano Details …
Pediatric Long Covid: Caregiver Survey June 2022
Our Pediatric Caregiver survey is intended to collect community information from caregivers of kids under age 18, who have Long Covid, in the United States. The survey will take approximately 10-15 minutes to complete and your responses will …
Kaitlyn’s Story
Kaitlyn has always been a dedicated student, making high honor roll & always giving 110%. She has been dancing since the age of 3, and began competitively dancing at the age of 9. Her favorite style of dance …
#PandemicAbleism is ableism amplified. It’s going from a whisper to a scream. It’s staring you straight in the face as it minimizes your existence. Insisting that vulnerable people can just “stay home” is #PandemicAbleism.
The Price of Reinfection
My son started sneezing, coughing, and had a runny nose, again… I kept my kids home for the 2020-2021 school year with the uncertainty of COVID. My motto has always been better safe than sorry and we have …
TREAT Long Covid Act (HR 7482)
The TREAT Long Covid Act authorizes Centers of Excellence for post-Covid multidisciplinary care.
The Protectors: #WhyWeMask
We love a hero story. We watch the movies and read the novels that celebrate their bravery. We reenact their legend on the playground as children. We all want to believe we could be the heroes, that in …
The Lie in Returning to Normal
Privilege as Policy Hurts Everyone Remember when we were doing “we’re in this together” sidewalk chalk and cheering for healthcare workers every evening? I think I had this hope that we really were “in this together.” I had …
CARE for Long COVID Act (S.3726)
This act will provide Comprehensive Access to Resources and Education (CARE) for Long COVID Act & Post Viral Illness.
How to Boil a Frog
Each decline has caught me totally off-guard, and to be honest, I have no idea how I got here. A feature of my illness can be memory loss and “brain fog” but maybe I was just way too …
When Illness Redefines Family
There’s the family you’re born with, and there’s the family you choose … is a comforting re-framing for people who have experienced loss, grief, or estrangement. And it’s true, we can choose our families. Friends and neighbors can …