Resources
This page brings together tools and trusted information to help families navigate life with pediatric Long COVID. Whether you’re working with your child’s school, preparing for a doctor’s visit, or looking to learn more about the latest research, everything you need is here in one place.
Use the quick links below to jump to each section. You can also download all resources at once using the “Download All” button.
Guide
Pediatric Pacing Guide
Pacing is an activity management strategy to prevent post-exertional malaise (PEM). PEM is a flare of symptoms and/or the appearance of new symptoms after activity, often presenting 24 hours after the triggering event. This guide can help you understand how to help your child balance activity and rest.
Tip Sheet
Talk About Long COVID with Your Child’s Doctor
The NIH-funded RECOVER Initiative collaborated with patient advocates, including Long Covid Families, to create this tip sheet with important information about how symptoms present in kids, how Long COVID can impact behavior and daily activities, how to prepare for doctor appointments, and what to say during the visit.
These resources are designed to help families understand their children’s educational rights and communicate effectively with schools. Whether you’re seeking a 504 plan, navigating IEPs, or advocating for safe learning environments, these tools can support you every step of the way.
Includes guides on accommodations, sample letters, and advocacy tips.
Getting medical care for a child with Long COVID can be overwhelming. These resources are here to help you prepare for appointments, track symptoms, and clearly communicate your child’s health needs. They’re built to support both caregivers and clinicians in understanding pediatric Long COVID.
Includes appointment prep sheets, symptom trackers, and caregiver guides.
Looking for a clinic or provider with experience treating pediatric Long COVID? This list includes providers across the U.S. who have evaluated or treated children and adolescents with Long COVID symptoms.
Prefer everything in one place? Click below to download a zip file with all PDFs from the sections above.
Explore the Research
Here are direct links to publication libraries and research hubs from leading institutions studying Long COVID. These sources are ideal for parents, professionals, and advocates who want to understand the science and stay up to date.
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