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Voices of Long Covid Families

Insights, Stories, and Resources for Families Navigating Long COVID

Sammy’s Story

The phone rings. It is 10am and the middle school is calling for us to come pick up our son Sammy. My husband and I exchange glances. “He is only

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A group of smiling teens standing close together outdoors, showing friendship and energy on a cloudy day.

What We Accomplished for Children with Long COVID in 2025

2025 Impact Report For Kids. For Answers. For Action. This year, Long Covid Families strengthened…

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he middle, and 'Families' on the bottom. The text is presented in full color with a clean, modern style.

Long Covid Families Policy Memo: July 29, 2025

This policy memo, submitted by Long Covid Families to congressional offices in July 2025, outlines…

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A young person stands in a hallway, leaning on the wall with one hand covering their eyes, showing fatigue and dizziness that can occur with POTS after COVID.

POTS and Long COVID in Kids: When the Symptoms Don’t Add Up

You know what it feels like to finally get a diagnosis that explains almost everything….

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Row of smiling pastel ghosts wearing hats and surrounded by tiny bats on a lavender background.

Halloween with Long COVID: 6 Ways Families Adapt

For many families, Halloween is about costumes, candy, and laughter in the dark. For children…

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Child resting on a couch, representing the fatigue many children with Long COVID experience.

Children Must Be Part of Every Long COVID Plan

HHS announced new national actions on Long COVID. We welcome this progress — and urge…

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Teen sitting against a wall wearing headphones and a hoodie, looking at a smartphone.

Building Real Treatments for Kids with Long COVID

Children with Long COVID cannot wait years for treatments to be tested. At the NIH…
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Doctor supporting two children during a medical visit, representing pediatric Long COVID care and awareness.

Childhood Cannot Wait: Expanding Long COVID Clinical Trials

At the 2024 RECOVER–Treating Long COVID (TLC) Workshop, one message came through loud and clear:…

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researcher looking through a microscope in a science lab.

Long COVID in Kids: Why Treatment Must Be a Priority

Children with Long COVID should not have to wait years for answers. Families are already…
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Person at desk joins a Zoom meeting with three others, each in separate video windows on the computer screen.

Pediatric Long COVID Research: What Early Studies Missed

Early research on pediatric Long COVID borrowed from adult data and missed much of children’s…
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US Congress Building

Kids with Long COVID Speak Out on Capitol Hill

Inside the conversations that could shape the future of care, research, and protections for children….

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