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Voices of Long Covid Families

Insights, Stories, and Resources for Families Navigating Long COVID

Read Sammy’s Story: a child riding on an adult’s shoulders outdoors.

Sammy’s Story

The phone rings. It is 10am and the middle school is calling for us to come pick up our son Sammy. My husband and I exchange glances. “He is only

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Colleagues in white lab coats gathered around a table, with two exchanging a high-five.

Scientific Board Preview

Meet the Scientific Board helping Long Covid Families connect pediatric research, clinical expertise, and community…
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girl with head resting on books

The Cost of Using Sick Children as a Warning

Children with Long COVID should not be used as warnings for people who are not…
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A school-age boy in glasses and a green shirt writes at a classroom table while other children work on art projects and worksheets around him.

Long COVID at school: Five Things a Doctor’s Note Does Not Cover

A child with Long COVID arrives late because mornings are the worst. She makes it…

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A chalkboard reading “Clinical Trial” beside blister packs of pills and a stethoscope on a blue wooden surface.

Long Covid Families statement on the RECOVER-TLC pediatric LDN trial

Why this trial exists Children and adolescents with Long COVID are currently facing two realities….

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Close up of a stethoscope resting on medical paperwork and a health care bill.

Children Need More Than Treatment

There is still no approved treatment for pediatric Long COVID, and when one arrives, it…

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two toddlers playing with toys

COVID During Pregnancy and Brain Development

New research on COVID during pregnancy and early brain development is getting media coverage. Some…

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woman at computer

Sharing Your Child’s Health Story Online

Learn how to protect your child’s health data and privacy while advocating for their needs…
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A group of smiling teens standing close together outdoors, showing friendship and energy on a cloudy day.

What We Accomplished for Children with Long COVID in 2025

2025 Impact Report For Kids. For Answers. For Action. This year, Long Covid Families strengthened…

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he middle, and 'Families' on the bottom. The text is presented in full color with a clean, modern style.

Long Covid Families Policy Memo: July 29, 2025

This policy memo, submitted by Long Covid Families to congressional offices in July 2025, outlines…

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A young person stands in a hallway, leaning on the wall with one hand covering their eyes, showing fatigue and dizziness that can occur with POTS after COVID.

POTS and Long COVID in Kids: When the Symptoms Don’t Add Up

You know what it feels like to finally get a diagnosis that explains almost everything….

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