Empowering Families, Advancing Research, and Building a Brighter Future for Children Affected by Long COVID.
We accelerate pediatric research, expand access to care, and ensure safe and appropriate access to education and essential medical care so every child with Long COVID has the support they need. We stand with families so no child is denied recognition, support, or opportunity because of this illness.
A world where every child with Long COVID is fully recognized, supported, and protected — in research, in medical care, and in education.
We are committed to providing compassionate support to
families, fostering resilience and hope throughout their journey.
We advocate for equitable access to resources and treatments for all children and families affected by pediatric Long COVID.
We advocate to advance research to understand, treat, and prevent pediatric Long COVID, driving
innovations that improve children’s health outcomes.
We strive to build a supportive community, raise awareness, and advocate for policies that improve the lives of families dealing with pediatric Long COVID.
Long Covid Families was founded in response to a growing crisis. As parents and children began sharing their stories, it became clear that families were navigating the long-term effects of COVID without support or answers.
Families recognized the patterns early. Through connection, shared experience, and determination, those conversations grew into the creation of a national nonprofit focused entirely on children’s needs.
Today, family voices remain at the center of everything we do. They inform our priorities, drive our advocacy, and guide our push for research, medical care, and education that reflect the full reality of pediatric Long COVID — so no child is invisible and no family is left to face this alone.
Together, we strive to improve the quality of life for families affected by Long COVID and work towards a future where every family receives the support they deserve.
Founder, President
Megan Carmilani is the Founder and President of Long Covid Families. She has more than 20 years of experience in patient advocacy and a background as a public school teacher. Living with infection-associated illness since childhood gives her deep perspective on pediatric chronic illness. She serves as a voting member of the NIH RECOVER Pediatric Coordinating Committee and contributes to the RECOVER Community Engagement Group, ensuring families help shape national research. Guided by the belief that lived experience should drive lasting change, Megan works to ensure children and families have a voice in every decision that shapes their lives and is committed to building a future where their needs are recognized in every system.
Board Member
Board Member
Board Member
© 2024 Long Covid Families. All rights reserved.
Long Covid Families is a 501(c)(3) nonprofit organization. EIN #87-4017934
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