We make sure children are counted where decisions are made.
Pediatric Long COVID is a chronic illness that reshapes childhood — from health to friendships to school. Families carry the weight of navigating daily symptoms and disbelief, often with little recognition in healthcare or education.
Long Covid Families exists to change that. We bring children’s realities into research, policy, and schools. We fight for protections and supports so no child is left out of the systems shaping their future. Until there are treatments, advocacy is what safeguards kids now.
We expand understanding of pediatric Long COVID so children are recognized and supported in schools, clinics, and communities.
We work for policies that expand access to care, strengthen education, and protect families.
We champion research that puts children at the center so discoveries lead to answers and treatments designed for them.
We equip families with resources, knowledge, and community so they can advocate for their children with confidence.
Children cannot wait for answers. We advocate for increased funding and faster investment in pediatric Long COVID research, and we partner with researchers to ensure children’s experiences shape every study.
Long COVID can disrupt learning in profound ways. We advocate for policies that provide accommodations, resources, and support so children can access a quality education without risking their health.
Children with Long COVID need coordinated, comprehensive care. We advocate for policies that expand access to specialists, mental health services, and rehabilitation programs designed for kids and teens.
Explore the highlights from Pediatric Long COVID Awareness Week 2025
The more you know, the stronger our movement becomes. Sign up for our newsletter and follow us on social media to get urgent alerts, updates, and resources for families, educators, and healthcare providers.
Every new supporter who understands the crisis brings us one step closer to solutions.
Sharing your family’s experience with pediatric Long COVID helps the world see what children are facing and can help inspire the action they need.
Every story told helps decision makers see the child behind the illness.
Your voice can open doors for children. Use our advocacy tools to connect with local, state, and federal policymakers and push for care, educational support, and research funding that meet children’s needs.
Every message sent puts children’s needs in front of the people who can act.
Join our national network of families and allies committed to changing the systems that children with Long COVID depend on. Together, we strengthen our voice and our impact.
With each new voice, our call for change grows stronger and more certain.
Every conference we join brings families’ experiences to the forefront, where change begins.
In 2022 and 2023, Long Covid Families brought together leading voices in education, healthcare, and family advocacy for our annual Back to School Conferences. These gatherings focused on one urgent goal: ensuring children with pediatric Long COVID can return to learning without sacrificing their health.
Experts shared strategies for classroom accommodations, healthcare coordination, and emotional support. Families shared what is working and what still needs to change. Each conference built a stronger network of parents, educators, and clinicians committed to protecting every child’s right to learn and thrive.
Every new strategy shared at these conferences becomes a lifeline for a child navigating school with Long COVID.
Long Covid Families ensures children with pediatric Long COVID are part of the global conversation. We have brought their voices to the World Health Organization in 2022, the Global Interdependence Center in 2022, the Woodcock Institute in 2023, and the Demystifying Long COVID Conference in Boston in 2024. In 2025, we participated as a panelist at the NIH Treating Long COVID Workshop.
