We are ensuring every child with Long COVID gets the care, research, and education they need to thrive.
No child should lose their childhood to illness. We are here to change what is possible for children with pediatric Long COVID by ensuring they have access to care, education, and answers. Working alongside families, researchers, and policymakers, we protect children’s rights, accelerate solutions, and give families the tools to navigate this journey. We will not stop until every child can grow, learn, and thrive with the support they deserve.
Many remain unaware of the challenges faced by those with Long Covid, especially children. We educate families, the public, and policymakers to close this gap.
We work with policymakers to inform policies that address the specific needs of the pediatric Long Covid community, ensuring they receive adequate care and support.
We push for research that puts children first. We educate families about ongoing studies and advocate for research agendas that address the unique circumstances and needs of children with Long Covid.
Families are on the front lines, advocating for the needs and rights of their children. We provide families with information, resources, and support they need to advocate for themselves and their loved ones.
Too many children with pediatric Long COVID must travel long distances to see a specialist, if they can access care at all. We advocate for policies that create more local access points, train pediatric providers to recognize and manage the condition, allow clinicians to provide care across state lines, and strengthen coordination among hospitals, community clinics, and nonprofits.
Noah, age 9, had to drive six hours for his first appointment. With stronger policies, children like Noah could get expert care close to home without the travel that delays treatment, drains family resources, and adds financial strain.
Pediatric Long COVID can make it nearly impossible for children to keep pace in school. We advocate for federal guidance, research into learning impacts, and stronger school health supports so every student can access the education they are entitled to under the law.
Amelia has been out of the classroom for more than two years because of illness and only meets with a teacher a few hours a week. That is not an education. We are working to ensure no child ever loses years of learning to an illness.
Every day without answers is another day a child waits for relief. We advocate for urgent funding to study how pediatric Long COVID develops, identify biological markers, develop diagnostic tools, and prioritize clinical trials designed specifically for children.
Jacob has lived with crushing headaches and dizziness for more than a year, with no clear path to diagnosis or care. With the right research in place, children like Jacob could finally have answers and the chance for better outcomes.
Explore the highlights from Pediatric Long COVID Awareness Week 2024
The more you know, the stronger our movement becomes. Sign up for our newsletter and follow us on social media to get urgent alerts, updates, and resources for families, educators, and healthcare providers.
Every new supporter who understands the crisis brings us one step closer to solutions.
Sharing your family’s experience with pediatric Long COVID helps the world see what children are facing and can help inspire the action they need.
Every story told helps decision makers see the child behind the illness.
Your voice can open doors for children. Use our advocacy tools to connect with local, state, and federal policymakers and push for care, educational support, and research funding that meet children’s needs.
Every message sent puts children’s needs in front of the people who can act.
Join our national network of families and allies who are committed to changing the systems that children with Long COVID depend on. Together, we strengthen our voice and our impact.
With each new voice, our call for change grows stronger and more certain.
In 2022 and 2023, Long Covid Families brought together leading voices in education, healthcare, and family advocacy for our annual Back to School Conferences. These gatherings focused on one urgent goal: ensuring children with pediatric Long COVID can return to learning without sacrificing their health.
Experts shared strategies for classroom accommodations, healthcare coordination, and emotional support. Families shared what is working and what still needs to change. Each conference built a stronger network of parents, educators, and clinicians committed to protecting every child’s right to learn and thrive.
Every new strategy shared at these conferences becomes a lifeline for a child navigating school with Long COVID.
Long Covid Families ensures children with pediatric Long COVID are part of the global conversation. We have brought their voices to the World Health Organization in 2022, the Global Interdependence Center in 2022, the Woodcock Institute in 2023, and the Demystifying Long COVID Conference in Boston in 2024.
© 2024 Long Covid Families. All rights reserved.
Long Covid Families is a 501(c)(3) nonprofit organization. EIN #87-4017934
