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Kids Deserve Care

Recognizing and Responding to Long COVID in Children

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Pediatric Long Covid Awareness Week July 21-25

A Generation at Risk

Six million children are living with Long COVID. Their symptoms disrupt memory, energy, mood, and development, keeping them out of school, sidelined from friendships, and left without answers.

This is a public health crisis for children. And it demands action.

This July, Pediatric Long COVID Awareness Week brings families, clinicians, researchers, and advocates together to push for the response children deserve. Kids need care. It’s time to fully fund the research, train the clinicians, and build the support systems our children need.

According to State-of-Art Narrative Review of Pediatric Research:
Postacute Sequelae of SARS-CoV-2 in Children

10-20%

Long Covid affects 10-20% of kids after Covid infection

5.8M

5.8 million kids impacted by Long Covid in the United States as of 2023

Register to Participate

When you register, you’ll receive:

  • Access to all live and recorded Awareness Week webinars
  • Invitations to advocacy and outreach activities
  • A downloadable toolkit tailored for families, partners, or professionals
Register Now
Two girls sitting at an outdoor table with coffee looking at at computer

Awareness Week Events

Join us for a week of impactful events designed to raise awareness, support, and advocacy for children affected by Long Covid. Below are the events and activities planned throughout the week.

Monday, July 21st

  • Share Your Story

    Families are speaking out to make pediatric Long COVID visible. Share your story publicly on social media or privately by email. The Family Toolkit includes prompts, templates, and tips to help you get started

Tuesday, July 22nd

  • Inside Out: Mental Health and Long COVID

    A live webinar exploring how Long COVID affects children’s mental health and why symptoms must be understood in the context of chronic illness.

    With Richard Gallagher, PhD, RECOVER Clinical Science Core, mental health lead, and child psychiatrist at NYU Langone; Megan Fitzgerald, PhD, RECOVER patient representative and researcher with the Brain Inflammation Collaborative and Patient-Led Research Collaborative; and Alexander Yont, MD, pediatric infectious disease specialist and director of the Post-COVID Program at Children’s National. 

Wednesday, July 23rd

  • From Discovery to Care: Moving Pediatric Long COVID Research into Action

    A live webinar exploring how pediatric Long COVID moves from research recognition to diagnosis and everyday treatment.

    With Rachel Gross, MD, MS, FAAP, Director of Pediatric Research for the RECOVER Clinical Science Core and Associate Professor of Pediatrics and Population Health at NYU School of Medicine; and Megan Carmilani, President of Long Covid Families and patient representative for the RECOVER Pediatric Cohort.

Thursday, July 24th

  • Advocacy in Action
    Families and advocates will meet with lawmakers in Washington, DC. Others can join in from home using resources included in the Family Toolkit.

Friday, July 25th

  • Reflection and What Comes Next
    We’ll close the week with a public recap of progress and share next steps for families, professionals, and allies.

Toolkits

Toolkits are available to registered participants and include resources designed to help you take part in ways that matter.

Family Advocacy Toolkit

Guides families through sharing their story, reaching out to the media, contacting schools and doctors, and participating in local advocacy. Includes templates, sample posts, flyers, and more.

Partner Toolkit

Designed for schools, nonprofits, and advocacy organizations that want to raise awareness or amplify the campaign. Includes outreach materials, sample messaging, and social media guidance.

Professional Toolkit

Created for hospitals, health departments, and medical providers. Includes clinical messaging, symptom overviews, communication templates, and a link to information on pediatric symptom management.

Toolkits are provided upon registration

Register now to receive your toolkit

Pediatric Long COVID Awareness Week is organized by Long Covid Families, a nonprofit led by and for families of children with Long COVID. Together, we are pushing for the care, recognition, and research our children deserve.

© 2024 Long Covid Families. All rights reserved.
Long Covid Families is a 501(c)(3) nonprofit organization. EIN #87-4017934