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Voices of Long Covid Families

Insights, Stories, and Resources for Families Navigating Long COVID

Sammy’s Story

The phone rings. It is 10am and the middle school is calling for us to come pick up our son Sammy. My husband and I exchange glances. “He is only

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Child resting on a couch, representing the fatigue many children with Long COVID experience.

Children Must Be Part of Every Long COVID Plan

HHS announced new national actions on Long COVID. We welcome this progress — and urge…

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Teen sitting against a wall wearing headphones and a hoodie, looking at a smartphone.

Building Real Treatments for Kids with Long COVID

Children with Long COVID cannot wait years for treatments to be tested. At the NIH…
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Doctor supporting two children during a medical visit, representing pediatric Long COVID care and awareness.

Childhood Cannot Wait: Expanding Long COVID Clinical Trials

At the 2024 RECOVER–Treating Long COVID (TLC) Workshop, one message came through loud and clear:…

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researcher looking through a microscope in a science lab.

Long COVID in Kids: Why Treatment Must Be a Priority

Children with Long COVID should not have to wait years for answers. Families are already…
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Person at desk joins a Zoom meeting with three others, each in separate video windows on the computer screen.

Pediatric Long COVID Research: What Early Studies Missed

Early research on pediatric Long COVID borrowed from adult data and missed much of children’s…
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US Congress Building

Kids with Long COVID Speak Out on Capitol Hill

Inside the conversations that could shape the future of care, research, and protections for children….

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Press Release

A new study published in *JAMA Pediatrics* confirms that even the youngest children—including infants and…
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When Recovery isn't a straight line. #pediatriclongcovid

When Recovery Stalls: Our Family’s Battle with Long COVID and POTS

In our journey of hope and healing, we encountered the ups and downs of long…
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Girl seated on the ground with arms around knees looking out window.

Why Your Child Feels Dizzy and Tired: Understanding Long COVID & POTS

Why Your Child Feels Dizzy and Tired: Understanding Long COVID and POTS Is your child…

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Advocacy

Support Telehealth

Telehealth has been a lifeline for children with Long COVID and other complex, chronic medical…

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