Caring for Children and Adolescents with Long COVID

Guidance, Support, and Resources for Families

Understanding Long COVID in Children

Long COVID refers to the lasting effects that can occur after a COVID-19 infection. Children may develop new symptoms, ongoing symptoms, or relapsing symptoms that continue well beyond the initial illness.

There are more than 75 symptoms of pediatric Long COVID, affecting many different parts of the body. Common ones include low energy, headaches, trouble concentrating, stomach pain, and dizziness. Some symptoms may look like behavior problems, such as school refusal, but they are signs of illness. Each child or teen may have a different mix of symptoms.

Long COVID affects what a child is able to do during a day, like how they play or if they are able to go to school.

What should I do if I think my child has Long COVID?

Make an Appointment

If you think your child may have Long COVID, it is important to talk with their doctor. Make an appointment with your child’s doctor to talk about what you are worried about, or talk about issues during your child’s regular doctor’s visits.

Right now, there is no cure for Long COVID.

Doctors can give your child medicines to help with some symptoms. They can help keep track of how your child is doing and let you know about new treatments.

Before the Doctor’s Appointment

Tips on what information to gather before visiting the doctor.

Keeping a Symptom Diary

  • Try to remember when your child had a COVID infection and what their experience was like during that time.
  • Write down all the symptoms they had, even if they went away.
  • Make a list of all the medications your child is taking.
  • Keep a journal for 1-2 weeks to document symptoms, including:
    • When they start
    • How severe they are
    • If they are related to an activity
    • How long they last
    • What makes them better or worse
  • Write down any patterns and symptom you observe.
  • Try to do this at the same time each day.
  • Track symptoms when your child changes activities, since they may worsen during transitions.

Making Sense of Symptoms

Simple Ways to Track What Matters

New or Different?

If your child seems more tired, restless, or struggling in new ways, write it down. Even small shifts that keep happening can point to Long COVID.

What’s Changed from Before?

Think back to before your child got sick. If things like sleep, eating, or moods are harder now, that change matters.

How Strong Are the Symptoms?

Use a simple 1–10 scale or emojis to rate symptoms. Tracking intensity shows when they’re lighter, heavier, or interfering more with daily life. 

How Long? How Often?

Do symptoms last minutes, hours, or days? Recording how long and how often gives a clearer picture of your child’s health patterns.

Tracking Symptoms. Finding Answers.

When you keep track of your child’s symptoms, you give doctors a clearer picture of what’s happening. Noticing patterns helps guide care, makes conversations with clinicians more focused, and brings your family closer to the answers you need.

Find a Provider

COMING SOON
Link to database to search for pediatric Long COVID doctor.

Medical Disclaimer
The information, including but not limited to, text, graphics, images and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis or treatment