Pediatric and public health organizations use and share resources developed with Long Covid Families.
AAP includes Long Covid Families in its Resources for Families, directs families and providers to an educational handout co-created by Megan Carmilani, and features LCF in an AAP CATCH planning partnership.
CDC links to Long Covid Families from its national Long COVID Resources page and carries a JAMA Pediatrics Patient Page co-authored by Megan Carmilani.
RECOVER distributes the Pediatric Long COVID Tip Sheet and the JAMA Pediatrics Patient Page developed with Long Covid Families leadership.
The Washington State Department of Health shares the Pediatric Pacing and Management Guide, co-created by Long Covid Families.
Founder and President of Long Covid Families. Available to speak on pediatric Long COVID, family experience, research, education, and policy.
Scientific Board members are available to speak on pediatric Long COVID research within their areas of expertise.
Interviews may be arranged when appropriate and with consent. Family contact information is never shared without permission.
Media inquiries: team@lcfam.org
Peer-reviewed research and patient education co-authored by Megan Carmilani, Founder and President of Long Covid Families.
Selected reporting featuring our work, research, advocacy, and the experiences of families affected by pediatric Long COVID.
Read perspectives on pediatric Long COVID research, medical care, education, advocacy, and family life.
Children with Long COVID should not be used as warnings for people who are not…
A child with Long COVID arrives late because mornings are the worst. She makes it…
Why this trial exists: children and adolescents with Long COVID are currently facing two realities…
Long Covid Families (LCF) is a nonprofit that advances research, medical care, and educational access for children with Long COVID. Since 2021, LCF has worked to ensure children are included in Long COVID research and in the work that shapes their care and education. LCF helps institutions use pediatric Long COVID evidence to make better decisions, so more children can get appropriate care and keep learning.
