Author: Long Covid Families

Anthony’s Story

A few months in when we realized that he has not played with his toys in a long time we took him to his pediatrician. They ran some blood work, and some of values were high, and some low…

Jenna’s Story

We thought we made it through the worst of it, but about 3 weeks after we were sick, Jenna started to tell us that she didn’t feel well. She said it felt like her body was too tired to move.

Pediatric Long Covid: Caregiver Survey December 2021

Demographics In December 2021 we polled caregivers of kids, under 18, with Long Covid. Thirty-four (34) families participated with the following demographics. 64.7% stated to have official Long Covid diagnosis from their doctors.

Post Covid Conditions

Post-viral illness is not new National Institute of Health “We also got worried very early on that one of the long term consequences of this terrible epidemic that there could be a large number of people who develop ME/CFS after covid. And that’s what’s happening now. And unfortunately we still don’t know enough to prevent […]

Approaching your doctor

What to do if you think that you or a loved one has Long Covid Common first complaints  Check out the page “What is Long Covid?” • Severe exhaustion• Headaches• Shortness of breath • Feeling lightheaded or dizzy • Heart palpitations • Body pain• Body tingling (pins and needles) • Wheezing • Rashes • Hives […]

Impact on Schools

For Educators:How is Long Covid impacting schools and what can we expect in the future? 1. Recognition of Long CovidThere are children who are struggling with disabling symptoms that can be difficult to describe including difficulty with cognitive function. 2. Future resources required by the schoolsWith 10-15% of children developing Long Covid symptoms post Covid-19 infection – […]

Tell Us Your Story

Long Covid Families is collecting and amplifying the voices of Long Haulers. Our team has put a lot of thought into how we would like to tell patient stories. We believe it’s important for the public to understand the seriousness of the illness, that we do need support, but our population does not see itself […]