Category: Community

The Price of Reinfection

My son started sneezing, coughing, and had a runny nose, again…

I kept my kids home for the 2020-2021 school year with the uncertainty of COVID. My motto has always been better safe than sorry and we have family who are considered very high risk.

But despite our restricted contact with the outside world, our family got COVID in the Fall of 2020. And before I even knew that Long Covid was an alternative to recovery, I was experiencing bizarre symptoms that made me scared that something was very very wrong with my heart.

After many doctors, specialists, and testing, I was diagnosed as a Covid Long Hauler. 

The Lie in Returning to Normal

Privilege as Policy Hurts Everyone Remember when we were doing “we’re in this together” sidewalk chalk and cheering for healthcare workers every evening? I think I had this hope that we really were “in this together.” I had this desperate optimism that this would be a turning point, that finally people would understand a little […]

When Illness Redefines Family

There’s the family you’re born with, and there’s the family you choose … is a comforting re-framing for people who have experienced loss, grief, or estrangement. And it’s true, we can choose our families. Friends and neighbors can become woven into our lives in beautiful ways. For chronically ill people, it’s less about choosing people […]

Impact on Schools

For Educators:How is Long Covid impacting schools and what can we expect in the future? 1. Recognition of Long CovidThere are children who are struggling with disabling symptoms that can be difficult to describe including difficulty with cognitive function. 2. Future resources required by the schoolsWith 10-15% of children developing Long Covid symptoms post Covid-19 infection – […]

Tell Us Your Story

Long Covid Families is collecting and amplifying the voices of Long Haulers. Our team has put a lot of thought into how we would like to tell patient stories. We believe it’s important for the public to understand the seriousness of the illness, that we do need support, but our population does not see itself […]