Telehealth has been a lifeline for children with Long COVID and other complex, chronic medical conditions, providing access to specialists, continuity of care, and crucial mental health support. Removing or reducing telehealth services would significantly harm these children and their families, who already face complex, ongoing challenges. đź“ž Contact your elected officials today to demand […]
Working together in 2024, Long Covid Families, the families we support, and you, our supporters, made major strides for children with Long Covid and the families who care about them. Here’s a look back at our top 10 highlights:
Guest post by Jen Roberts Holidays are often portrayed as this ideal, cheerful and cozy time spent with family. But real life doesn’t always end up that way. It tends to be a mixed bag with some highs and lows. When you are grappling with the losses associated with a complex, invisible illness, it is […]
The lack of masks in hospitals means seeking vital care comes with unnecessary risks. This is what the collective abandonment of disabled people looks like.
Today is the 32nd birthday of the American’s with Disabilities Act, and we are starting to quantify the effects of COVID-19, and post-viral illness on the American working class.
Post-Covid conditions do not discriminate. This week we would like to share with you some of the famous Long Haulers who are speaking out about their health stuggles since catching Covid.
Our Pediatric Caregiver survey is intended to collect community information from caregivers of kids under age 18, who have Long Covid, in the United States.
Kaitlyn has always been a dedicated student, making high honor roll & always giving 110%. She has been dancing since the age of 3, and began competitively dancing at the age of 9. Her favorite style of dance was tap.
My son started sneezing, coughing, and had a runny nose, again…
I kept my kids home for the 2020-2021 school year with the uncertainty of COVID. My motto has always been better safe than sorry and we have family who are considered very high risk.
But despite our restricted contact with the outside world, our family got COVID in the Fall of 2020. And before I even knew that Long Covid was an alternative to recovery, I was experiencing bizarre symptoms that made me scared that something was very very wrong with my heart.
After many doctors, specialists, and testing, I was diagnosed as a Covid Long Hauler.Â
The TREAT Long Covid Act authorizes Centers of Excellence for post-Covid multidisciplinary care.
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Long Covid Families is a 501(c)(3) nonprofit organization. EIN #87-4017934
