Guest post by Jen Roberts Holidays are often portrayed as this ideal, cheerful and cozy time spent with family. But real life doesn’t always end up that way. It tends to be a mixed bag with some highs and lows. When you are grappling with the losses associated with a complex, invisible illness, it is […]
Author: Long Covid Families
POV: The Benevolent Violence of an Unmasked Hospital
The lack of masks in hospitals means seeking vital care comes with unnecessary risks. This is what the collective abandonment of disabled people looks like.
Happy Birthday ADA!
Today is the 32nd birthday of the American’s with Disabilities Act, and we are starting to quantify the effects of COVID-19, and post-viral illness on the American working class.
Celebrities Speak Out on Long Covid
Post-Covid conditions do not discriminate. This week we would like to share with you some of the famous Long Haulers who are speaking out about their health stuggles since catching Covid.
Pediatric Long Covid: Caregiver Survey June 2022
Our Pediatric Caregiver survey is intended to collect community information from caregivers of kids under age 18, who have Long Covid, in the United States.
Kaitlyn’s Story
Kaitlyn has always been a dedicated student, making high honor roll & always giving 110%. She has been dancing since the age of 3, and began competitively dancing at the age of 9. Her favorite style of dance was tap.
The Price of Reinfection
My son started sneezing, coughing, and had a runny nose, again…
I kept my kids home for the 2020-2021 school year with the uncertainty of COVID. My motto has always been better safe than sorry and we have family who are considered very high risk.
But despite our restricted contact with the outside world, our family got COVID in the Fall of 2020. And before I even knew that Long Covid was an alternative to recovery, I was experiencing bizarre symptoms that made me scared that something was very very wrong with my heart.
After many doctors, specialists, and testing, I was diagnosed as a Covid Long Hauler.
TREAT Long Covid Act (HR 7482)
The TREAT Long Covid Act authorizes Centers of Excellence for post-Covid multidisciplinary care.
CARE for Long COVID Act (S.3726)
This act will provide Comprehensive Access to Resources and Education (CARE) for Long COVID Act & Post Viral Illness.
How to Boil a Frog
Each decline has caught me totally off-guard, and to be honest, I have no idea how I got here. A feature of my illness can be memory loss and “brain fog” but maybe I was just way too busy to notice what was happening? Or more likely, I didn’t see the magnitude in each milestone
