Press Kit

Who We Are

Long Covid Families is a patient-led 501c3 nonprofit, that focuses on support for those impacted by Long Covid and triggered illness. Illness is a disrupter to the entire family and can cause a feeling of isolation and disconnection. We work to help those affected reconnect to themselves, their families, and the community.

What We Do

We offer guidance on how to improve and maintain quality of life while seeking therapies, treatments, accommodations, and support in the healthcare system, schools, workplace, and in the community.

We participate in Long Covid research, speak to the media, speak at conferences, host events, and we advocate both in communities and on a national scale. We offer support through our private group and awareness through various social media channels.

Quick Facts – Summer 2022

  • Long Covid Families was founded in 2021
  • We received our nonprofit status in December 2021.
  • Our team is comprised of 15 volunteer advocates from around the United States.
  • We have a community reach of ~6,000 and are steadily growing
  • Long Covid Families collaborated with Senator Kane’s office to draft the CARE for Long Covid Act

Logo & Assets

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Our Story

Long Covid Families was founded by Megan Carmilani, who developed post-viral syndromes (POTS, MCAS, and ME/CFS) after two separate Mononucleosis diagnosis’ as a child. When the pandemic hit, Megan began to be approached by friends and parents who were seeing the same symptoms and diagnosis that Megan had received. She decided to create Long Covid Families as the community that she needed as a child.

Meet the People

Meet the people of Long Covid Families.

Seedling popping up, growing through soil

Donate

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Contact Us

Get in touch with Long Covid Families.

COMMUNITY SUPPORT
Long Covid Families is happy to support the community in any way we can. Join our Facebook Support Group, follow us on social media, or contact us, anytime.

SUPPORT THE CAUSE

Donations are tax deducible and every little bit helps us pay for the essential tools we use for advocacy & awareness. Donate to Long Covid Families.