Nat’s Story
Nat is a bright, high achieving artist. Loves to draw and an honor student in spite of her disability. She's a unique and old soul. Our journey started Christmas, December 2021. We had avoided known infection until the …
Bella’s Story
Bella is 20 yo, an artist and hopes to major in Anthropology. She has had to defer college until her health stabilizes. She is unable to attend at this time due to severe fatigue and dysautonomia that gives …
Vanessa’s Story
Vanessa got COVID two years ago and struggled with pulmonary, cardiac, and neurological issues in the months following her infection. Although some of these issues have resolved, Vanessa still struggles with extreme fatigue and brain fog that we …
Sammy’s Story
The phone rings. It is 10am and the middle school is calling for us to come pick up our son Sammy. My husband and I exchange glances. "He is only making it for an hour." After a year …
Navigating the Holidays with Long Covid
Image of white ceramic house grouped with pinecones and a candle Guest post by Jen Roberts Holidays are often portrayed as this ideal, cheerful and cozy time spent with family. But real life doesn’t always end up that …
POV: The Benevolent Violence of an Unmasked Hospital
The lack of masks in hospitals means seeking vital care comes with unnecessary risks. This is what the collective abandonment of disabled people looks like.
Happy Birthday ADA!
Today is the 32nd birthday of the American's with Disabilities Act, and we are starting to quantify the effects of COVID-19, and post-viral illness on the American working class.
Celebrities Speak Out on Long Covid
Post-Covid conditions do not discriminate. This week we would like to share with you some of the famous Long Haulers who are speaking out about their health stuggles since catching Covid. NBC New York Actress Alyssa Milano Details …
Pediatric Long Covid: Caregiver Survey June 2022
Our Pediatric Caregiver survey is intended to collect community information from caregivers of kids under age 18, who have Long Covid, in the United States. The survey will take approximately 10-15 minutes to complete and your responses will …
Kaitlyn’s Story
Kaitlyn has always been a dedicated student, making high honor roll & always giving 110%. She has been dancing since the age of 3, and began competitively dancing at the age of 9. Her favorite style of dance …
#PandemicAbleism
#PandemicAbleism is ableism amplified. It’s going from a whisper to a scream. It’s staring you straight in the face as it minimizes your existence. Insisting that vulnerable people can just “stay home” is #PandemicAbleism.
The Price of Reinfection
My son started sneezing, coughing, and had a runny nose, again… I kept my kids home for the 2020-2021 school year with the uncertainty of COVID. My motto has always been better safe than sorry and we have …
TREAT Long Covid Act (HR 7482)
The TREAT Long Covid Act authorizes Centers of Excellence for post-Covid multidisciplinary care.
The Protectors: #WhyWeMask
We love a hero story. We watch the movies and read the novels that celebrate their bravery. We reenact their legend on the playground as children. We all want to believe we could be the heroes, that in …
